Planning for adults with developmental disabilities can feel like trying to put together a puzzle without having all the pieces. I know that feeling all too well.
About a year before our son turned 18, I started really thinking a lot more about his future—like, what’s the game plan for the next decade? Where’s he gonna live? How much help will he need? Will he be able to have a job?
I mean, seriously, where do you even begin with all this?
Know Where to Start
So, what’s top of your list? Is it finding a stable place to live, landing a meaningful job, or deciding on the best support for your adult child? For me, I always need a jumping-off point—something to focus on.
- If housing is a priority, you might wonder: What’s the difference between a group home and an assisted living facility? Or maybe you’re feeling inspired and want to create something totally new. Where do you even start?
- Employment might be the first step, but then, what kind of workplace will suit them best, and just how much help will they need to be successful?
- Maybe you need support right away. What types of supports are available? Is hiring paid support the right choice, or is it better to tap into your own circle—like family, friends, neighbors, or even folks from your church—your natural supports?
Funny how one question always seems to lead to another. But here’s some good news: there are amazing resources out there to help answer all these tough questions, ya just gotta know where to look.
No worries! I’ve picked some of my favorite future planning resources to help you start to put the pieces together. Let’s jump in and try to make sense of it all.
All of the resources listed below are not limited to any particular disability; they are accessible for use by everyone.
1. The Arc’s Center for Future Planning
I love The Arc. It’s a go-to resource for so many topics, especially when it comes to planning for the future—housing, employment, you name it. They help families and individuals create plans that truly reflect their wants and needs.
They offer an amazing planning tool known as the Center for Future Planning. It’s kind of like mapping out a road trip—fun and a bit daunting, but totally worth it!
Also, I highly recommend checking out the video gallery where others share their planning stories. It’s so inspiring and gives you a sense of hope.
What They Offer:
Besides the future planning tool, there are loads of other handy resources like:
Plus, lots of states have their own Arc chapter! Finding yours is a breeze with their directory.
Why It’s Great:
They don’t just hand out information; they ensure families are not only informed but also equipped with the tools to improve life for their loved ones. The Arc offers peace of mind every step of the way. They’re a great place for people to turn to get the support they need to live their best lives.
2. Autism Housing Network
Think of the Autism Housing Network (AHN) as a meeting place for innovative housing solutions and community living options tailored for any individual with a developmental disability. It’s a hub where you can find, share, and explore housing resources that fit your unique needs. This resource is filled with practical ideas and real-life success stories that inspire and inform.
What They Offer:
It’s all about connecting people with resources and ideas that work for them. Whether you want to find existing housing or create your own, they have the necessary tools to help you. Here are several other amazing housing resources they offer:
- “A Place in the World” report
- Housing and Support Learning Series
- AHN housing directory
- AHN resource directory
Why It’s Great:
What I love about the Autism Housing Network is that it provides a platform for sharing experiences and learning from one another. It empowers people to make informed decisions about their living arrangements. Making the whole process of finding your own space less scary and way more doable.
Related: Developmental Disability Resources: 6 Easy Ways to Get Connected | Do Adults With Developmental Disabilities Have to Live With Their Family?
3. Autism Speaks Tool Kits
Autism Speaks Tool Kits offer an incredible collection of resources for planning ahead, from exploring housing options to understanding funding, turning tricky topics into easy steps that are manageable and straightforward.
What They Offer:
The Tool Kits are designed with the user in mind, breaking down complex processes into bite-sized pieces that make them less intimidating. If you ever felt lost planning for the future, these Tool Kits have got you covered:
- Financial Planning Tool Kit
- Employment Tool Kit
- Transition Tool Kit
- Housing and Residential Tool Kit
Why It’s Great:
Autism Speaks resources will boost your confidence. It will guide you step by step so you can make choices that truly fit your family’s dreams. Whether you’re just starting or tweaking plans you already have, these Tool Kits will help you create a future that feels just right for your child.
4. Together For Choice
Imagine your adult child having the freedom to choose where and how they want to live—sounds amazing, right?
That is what Together For Choice (TFC) is all about—advocating for inclusive and diverse housing options and ensuring everyone has the freedom to choose their living environment. Everyone deserves to choose when it comes to housing!
What They Offer:
Their webinars and articles are definitely worth a look:
Join as a member, and you’ll get the scoop on all the new stuff they release!
Why It’s Great:
By partnering with TFC, families gain access to a network of advocates who are dedicated to making sure everyone can live with dignity and autonomy. It’s like having an ally in your corner, ensuring that your loved one has the best possible living situation tailored to their needs and preferences.
5. Charting the Life Course
Imagine a framework that offers families a way to envision and plan for any aspect of a loved one’s life. That’s Charting the Life! From daily routines to long-term goals—it covers all the bases.
What They Offer:
Charting the Life helps families tackle life’s many twists and turns, making sure that every detail is covered. Have you ever felt like something was overlooked? This plan ensures that nothing is missed.
Why It’s Great:
Charting the Life is flexible and adaptable, allowing you to personalize it to meet each individual’s unique needs and dreams. It helps families stay on top of things, cutting through the chaos with a clear plan in what can often feel like an overwhelming process.
So, there you have it—five amazing resources that can make future planning a little less overwhelming and a lot more hopeful. Whether you’re just starting to explore options or are knee-deep in planning, these resources can be the companions you need.
I’d love to hear your go-to resources when it comes to future planning. Let’s start a conversation. Be sure to leave a comment below.
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